I did not know that I had lupus until about a year ago. It took far too many years for me to finally get diagnosed with this dreaded disease. I look back and remember even as a child, never really feeling great. I learned quickly to keep it inside, because people really only like you when you are healthy and seemingly together.
Years went by, and I felt worse and worse at the passing of each one. Even a regular cold would put me out for weeks, and at times put me in the hospital for days at a time. The doctors never had answers. It was always “a virus” of some sort.
Over the years, I went to doctor after doctor… One doctor told me it was in my head. Another prescribed this and that. And so on.
Finally, I found a doctor who listened. Took me seriously, and spent two and a half years helping me figure out what was wrong. After countless blood tests, a heart attack, kidney issues, several more hospitalizations, I was finally diagnosed! The right blood tests were given, and the answer was finally clear.
I was diagnosed with TWO autoimmune diseases; Lupus and Sjogren’s Syndrome. I FINALLY had answers. I was devastated… and relieved. I mean who the hell wants either of these?? However, I was happy to finally know that I was not a hypochondriac or crazy!
So… yeah… now I know what is going on, and why I feel like shit all the damn time. This past year or so has been progressively worse than ever… You see, I don’t get to rest like we with lupus should. I am a single mom who has to work, and hustle to provide for my child. I have to plaster a fake smile on my face and push myself to work work work.
I have been dealing with it all alone, and it is very lonely, frustrating, and difficult. So, I had an emotional meltdown recently, and decided to create this blog. It is a place to vent, learn, discover, share… and hopefully exchange encouragement and knowledge with others like me!
Important Note Before Reading My Lupus Blog:
I do not sugar coat things here, and definitely swear in my posts. I am raw, honest, and 100% myself. While I believe in being positive in life, living with lupus is something that does not always bring out the positivity in me. I am not going to pretend my life is fabulous to make someone else happy, or to gain more readers.
This blog is MY LUPUS TRUTH… in the raw.
Other than that…
Welcome to my lupus blog, and please feel free to browse. =)